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When it comes to patient treatment goals, people living with inflammatory conditions put pain relief, easier movement, and more energy at the top of the list — far ahead of remission. A new GHLF survey of 808 people, presented at ACR Convergence 2026, shows why care should focus on how patients actually feel. The post
People with polymyalgia rheumatica most want to know how to safely lower their steroid dose, yet this topic isn’t covered in health care provider education. Two CDC-funded GHLF studies, presented at ACR Convergence 2026, show where PMR education and research fall short and what patients need next. The post PMR Patients
Many people with hidradenitis suppurativa (HS) aren’t getting treatments that reach beyond the skin. A GHLF survey of 462 people reporting HS symptoms, presented at ACR Convergence 2026, found that people taking DMARDs reported fewer painful HS symptoms — and that people without a rheumatic condition, such as rheumatoi
What happens to pain and flares when someone with rheumatoid arthritis takes a GLP-1 medication? I tracked my own symptoms for a year. My patient perspective poster, which will be presented at ACR Convergence 2026, shares what changed and why patient experiences belong in research. The post GLP-1 and Rheumatoid Arthrit
Fewer than 1 in 3 people with myositis are very satisfied with their treatment. A new GHLF survey, presented at ACR Convergence 2026, shows what patients most want from care: moving more easily, having more energy, and staying independent. The post What People with Myositis Want from Treatment: New Research at ACR 2026
Carly wanted to be the best mom she could be to her two young sons, but severe pain and muscle weakness made daily life a struggle. Fitness and an unexpected community helped her rebuild her strength. In her own words, she shares how she found a new way to move and a community that helped her take her life back. The po
Psoriasis isn't only skin-deep. Finding the right treatment can help you better manage your psoriasis from the inside out. The post Is Your Psoriatic Disease Treatment Still Working Well? When to Talk About a Change appeared first on CreakyJoints .
Most people think Sjögren's means dry eyes and dry mouth — an inconvenience, not a crisis. Content creator Melissa Taylor spent four years and countless doctors chasing an answer, while her real symptoms — crushing fatigue, brain fog, dizziness, digestive issues — got scattered across separate diagnoses. Here's what sh
Why does it take so long to get diagnosed with myositis and what happens next? Getting diagnosed with myositis can take months, even years. A rheumatologist explains why the symptoms are so easy to miss, and two patients share what their own diagnosis journeys really looked like. The post The Long Road to a Myositis Di
New research shows most people with myositis live with real pain — even though medical textbooks have long called it a "painless" disease. Here's what's actually going on, and how to talk to your doctor about it. The post Myositis and Pain: Catching Medical Understanding Up to What Patients Already Knew appeared first